Episode 1

One in One Hundred

SMALL HEARTS, LOUD VOICES Episode 001 — "One in One Hundred"

Episode Notes

There is a number that stopped me the first time I heard it.

One in one hundred.

That is how many babies are born with congenital heart disease. Every single day. In every country. In every hospital. In every family that thought they were ready for what was coming next.

One in one hundred.

It is the most common birth defect in the world. It affects more children every year than all childhood cancers combined. And most people, until it becomes personal, have never heard those three words together. Congenital. Heart. Disease.

That is what this first episode is about. Not just the number. But the children living inside it.

This episode is the reason this podcast exists. It is the conversation I needed someone to start years ago. It is the fact that deserves to be said out loud, the story that deserves to be told with care, the encouragement that every parent in a cardiac waiting room deserves to feel in their bones, and the call to action that asks only one thing of you today.

Tell one person.

That is it. Just one. Tell them what you learned. Tell them one in one hundred babies is born with a heart that needs more than the world is currently giving it. Tell them these children are real and they are here and they are fighting every single day in ways most of us will never fully understand.

Because awareness starts with a conversation. And you just had one.

About the Podcast

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Small Hearts, Loud Voices
Facts, stories, and encouragement for every family touched by congenital heart disease.

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About your host

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Adrian Adair

Adrian Adair is the founder of Heartbeat Forward, a federally recognized 501(c)(3) nonprofit dedicated to congenital heart disease awareness, support, and advocacy for children and families living with CHD.
He did not come to this work by accident. He came to it because he believes congenital heart disease is the most overlooked crisis in children's health today. One in one hundred babies is born with it. It affects more children every year than all childhood cancers combined. And most people have never heard of it until it walks into their own family.
Adrian is the author of The Quiet Majority, a book about why congenital heart disease deserves to be seen, and a tireless voice for the children and families navigating a diagnosis the world moves too fast to notice.
Small Hearts, Loud Voices is his commitment to changing that. Every episode is built around one CHD fact, one child's story, one word of encouragement, and one call to action. No filler. No noise. Just truth, humanity, and purpose for every family touched by congenital heart disease.
He believes the children living with CHD are not statistics. They are not diagnoses. They are whole, extraordinary people with hearts that keep beating against every odd. And they deserve a world that knows their name.
Visit heartbeatforward.org to learn more about the mission.